Juliana

Born without a face

What a sad but inspirational story of Juliana Wetmore on Channel 5 tonight.. This little girl was born with Treacher Collins syndrome in it's most severe form.
Her face is grotesquely disformed to a degree that even in a horror movie you'd be shocked.
But inside that face is a normal active two year old. Seeing her 4 year old sister Kendra and her mother Tami you could see just how stunningly beautiful she'd have been. But who cares about beauty? She was just adorable.
Such a heart warming and humbling programme. I was so upset to see the little one crying before one of her surgeries but not able to hear her sob. One of the hardest bits of paediatric nursing is to have to hurt the kids, with needles or operations. I hope they do another programme so we can see how she recovers.