Sunday, September 19, 2004

Premature babies' disability risk

BBC NEWS | Health | Premature babies' disability risk
Why has this suddenly become an issue? The media jumps on such stuff and clings like leeches. As if they are suddenly presenting us with something new and ground breaking. It's even obvious to even the layman that the very premature baby is fragile and all sorts of things can happen. They aren't mature enough at 26 weeks to breath and live without help. Otherwise we'd be born at 26 weeks. But technology and medicine can help them to grow and live...Some normally but sadly others with some or a lot of disability which doesn't always show itself immediately.
Each family is counseled and told the risks. I have worked in NICU and it is a very stressful and roller coaster time for those poor parents. I remember once seeing a 27 weeker brought in and his parents crying at the end of the incubator and I remember the feeling of pity for them, because I knew what they were going to have to suffer, and in the end still not be sure the baby was going to be ok. But if you asked them , shall we not do anything?. The answer would have been an emphatic NO. The chance of life is all they ask.
Each day is a mile stone, each problem to be overcome. Each step forward often brings two steps back. Parents are well informed in NICU and know the risks.....or ok they think they know the risks. But you cannot take peoples decisions out of their hands. Unless you have an extremely good reason.
Try telling these parents that we won't try to save their daughter. See what they say
Baby Amy fighter

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